Last Tuesday when I was headed home from my sister's house I got a call that sent my world spinning. It was Avery's pediatrician. He asked where I was and I told him I was driving home. He then told me to pull over so that we could talk about some things. I pulled over and started shaking like crazy, I just knew it had to be bad. Dr. Karam said that Avery's 2nd (the one they do at 2 weeks old) Newborn Screening had come back abnormal. He said that they would do further testing to confirm but that he could possibly have Galactosemia. He said that I needed to immediately stop breastfeeding and put him on soy formula. After he went into detail about how "things could turn into a life-threatening situation very quickly" with Galactosemia I started bawling. At that moment I completely understood the intensity of love that a parent feels for their child. Its a different kind of love that you only have for your children. Its the most amount of love that you have ever loved anyone...but times a million.
So on the way home I was praying and trying to make deals with God. Thanks to all of the prayers from family and friends I believe they have been answered. Today the geneticist called and confirmed that he has Duarte (DG Galactosemia). This is good news because it is very different from Classic Galactosemia. With Duarte, it only has to be treated for the 1st year of life. And some people choose not to. There are no signs or symptoms with DG so Avery will continue to be his happy, healthy self. We however, are going to stay on the soy formula for the 1st year just to be safe. Poor baby really wants to breastfeed and so do I. I plan on speaking to the specialist about continuing to breastfeed some along with the soy formula. The dr would have to assure me that there is absolutely no way that the galactose in my milk could cause him harm in order for us to start breastfeeding back up though.
After such a scare I have realized just how extremely lucky we really are. Avery has changed my life in a way that is better than I couldve ever imagined and I thank God everyday for him. =)
I will keep yall posted on this...
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